Friday, September 4, 2009

Pulling Teeth, Or, Not Having Information About My Condition

A disclaimer: my dentist is wonderful. By "pulling teeth" I'm referring to the fact that obtaining information has been as difficult as this dental procedure.

One of the things one reads about the Mayo Clinic is how eager they are to inform and educate their patients. In New York, at least at the facility I use which is also world famous, there is a very different culture.

Here's the chronology. It's not a pretty picture.
On July 23rd I am diagnosed with phlebitis in my right leg. The HSS screening pre-op doctor ordered a sonogram only of the leg whose knee was scheduled for replacement on July 29. Surgery canceled although it seemed that the surgeon would have happily waited a couple of weeks and gone ahead.
July 28: appointment with the "Vascular Guy" recommended by the screening doctor. He does not believe the diagnosis of deep vein thrombosis by the HSS radiologist and orders a new sonogram, this time of both legs.
August 4: sonogram confirms that I have superficial phlebitis -- in both legs. Edgardo, the technician, distinguishes himself by wiping the gel from his hands on my robe (which I'm wearing!) and recommending that I use this very robe which he has used as his towel to wipe off the gel from my own legs. After a minute or two of "euuhhh" reaction, I find some towels provided for this purpose and avail my self of them. Have not reported Edgardo. Now get this: the diagnosis was provided by the head technician, not the doctor. He recommends that I now wear compression stockings on both legs. He is also very vague about whether or not I will hear anything from "Vascular Guy."
As far as I know, no further communication of the diagnosis -- or anything else -- has been made to my PCP (a.k.a "Doctor")-- to this day.
Week beginning Monday, August 10, Doctor informs me that he/she can't give me any idea of treatment, future monitoring or anything else because the "Vascular Guy" has gone on a two-week vacation. Since when don't primary care physicians know about the care and treatment of this fairly common condition?
On August 24 Doctor goes on vacation so I am still wondering, one month later, what the follow up will be. I try twice to call the "Vascular Guy" but the temp replacing the practice secretary does not forward the messages. During the second call she allows as how I should call when the secretary returns on August 31.
August 31: Doctor returns from vacation. still haven't heard heard whether Doctor has spoken with "Vascular Guy" re: my continued care -- by September 3
September 2 "Vascular Guy's" PA returns my call and provides some information about how to wear the stockings and that because the clots are close to the knee, that I should wear the thigh high style (as it were).
Naturally I have done web research on phlebitis but I am still in complete ignorance of "Vascular Guy's" follow up plan -- if any.

Thursday, September 3, 2009

The Bureacracy Involved in Getting Presciption Support Stockings

Anyone who claims that there is no byzantine medical care bureaucracy already ruling every aspect of our health care has probably never had ongoing medical issues beyond routine exams.

In answer to those who say a public option will limit choices, let me point out that I cannot acquire compression stockings for my phlebitis at the facility recommended by my physician's office. Instead I must purchase them from an agency in Aetna's network if I would like to be reimbursed for this covered expense. So, already, I am forced to use a particular vendor who may or may not meet the standards preferred by my physician. Neither I nor my physician has much of a choice in this matter.

When I called Aetna I was advised that although 90% of the cost is supposed to be covered, both my physician and I should read Aetna's 10-page policy bulletin on the subject and be ruled by it. In other words, Aetna, an insurance company, not a medical provider, (just in case you weren't paying attention) will ultimately decide what sort and how many stockings I may have. When I can finally reach a live person at the approved vendor, (whom I have called three times since yesterday to no avail, by the way,) besides the fax # for the prescription, I must learn what information, such as diagnosis code and produce code the vascular surgeon's office must provide. And, anything else.

Anyone who may be worrying about the potention future threat of a government bureaucracy ruling health care is way behind the times. This structure already exists and is thriving. It reminds one of Gogol's tsarist Russian bureaucrats. Some days I think that even the Postal Service would be better. That is, until I have the opportunity to visit the Cathedral branch... What about the IRS? Just kidding.

Wednesday, August 19, 2009

David Plotz of Slate Is Right -- It Should Be Called Insurance REFORM

He's right -- that's the key. It's not health care reform so much as regulating insurance. So,folks, let's call it "Insurance Reform". Now that the the pharmacological industry is pretending to play along with Obama, having made a sweetheart deal at the voter's expense, let's work on really getting this right. Then, perhaps we can fix the pharmacological issues.

If only the Senators weren't in the sway of all these corporate interests....

Tuesday, August 18, 2009

Doctors Making Money

Unfortunately, I've alienated my new primary care physician. After looking around for a couple of years and trying out some other pcps, I settled on a highly-recommended physician. Doctor(I don't want to use a name or pronoun so I will use "D" instead) has great credentials and we made a family decision that I would use an out-of-network pcp. D is smart and interested in the total care of the patient.

However, I seem inadvertently to have come across a major Achilles heel. When I began my warfarin/coumadin therapy a few weeks ago D exhorted me to come in for a blood test a.s.a.p. I explained that my insurance company would only reimburse me if I went to a contracted lab. D insisted I use the practice's lab and told me that the charge was only $30 for the test. D said that it would be so much faster and efficient for D -- and me, too. So, I traipsed across town to the office and was shocked to discover that the INR test was actually $62, $30 for the blood test plus $32 for the venipuncture (sticking the needle in to retrieve the blood). Naturally, for the second INR test that week I went to Quest, the lab with a contract with Aetna. Which turned out to be a lovely surprise, actually, as Quest has adopted an appointment system and I had to wait exactly 5 whole minutes, even without an appointment. But, that's beside my point.

My point is that for about 10 minutes of my first office visit since the phlebitis diagnosis (which turns out to be superficial but in both legs) and the cancellation of knee replacement surgery, D quite adamantly berated me about not using the practice's dedicated lab. D said D couldn't practice good medicine (I kid you not) under these circumstances. I was close to tears, feeling rather overwhelmed with my then still-undiagnosed but potentially serious deep vein thrombosis.(Neither D nor I had yet received the official sonogram results of the day before!) D claimed that D's practice of medicine was compromised without immediate INR readings. Waiting 24 to 48 hours just was not acceptable. D told me D wished the practice could afford (note the irony here) the machine that instantly finds the INR levels with a pin prick because -- get this -- there weren't enough patients on warfarin/coumadin to make it affordable it for D!

This is a good example of at least three problems with our present system and doctors trying to make money. Should doctors be allowed run their own profit-making labs and radiology centers force their patients to use them? What about the unnecessary and inefficient duplication of services in an urban setting? Are patients likely to get the best service in a small radiology unit at a private practice or in a larger facility with more traffic and thus (one hopes), more experience?

My share of the Quest test is $.61, by the way.

Monday, August 17, 2009

Now Obama is Scrapping "The Public Option"?

I've just written my senators, congressman and the White House protesting the apparent scrapping of the so-called "public option" for health care. This morning Jerry Nadler was on NPR and for once someone was explaining what is really going on. It was refreshing to hear it said out loud because it's something a lot of the electorate already understands.

Obama, Clintonesque middle-grounder that he often is, seems to be willing to sell out to the financial power excercised by the insurance, pharmaceutical and other health industries over our Senate. Obama is whimping out again. And, he'll lose a lot of support.

This is very depressing.

Thursday, August 13, 2009

Who's Kidding Whom: We NOW Have Limited Access to Medical Care

Admittedly, the New York medical care market is different from other areas, or so I'm told. More and more doctors are refusing any insurance. It seems as though only newly minted, old hands or not-so-highly-rated doctors are the only ones accepting insurance in this market. When the pro-insurance scare mongers claim we will have limited access and choice if any of the present reform plans are passed, what planet are they living on? Don't they know what's going on.

Since about late April my right wrist has been aching -- and it's getting worse. I followed the recommended wait-and-see approach. But, it's now time to see what's going on. However, it turns out I can't go to either of the two doctors recommended by my primary care physician because neither one takes Aetna, my primary insurance. The web site for one doctor said he did take my plan bit when I called his office his receptionist said he no longer did. And, that's her insurance!

Today I tried to find a hand surgeon who would take Aetna. So, I had to look through Aetna's poorly-designed "DocFinder" and then call around until I found one who did AND was affiliated with the same hospital as my other doctors. (Call me silly, but isn't it nice when the doctors can consult with each other?) Only two of the hand surgeons at the Hospital for Special Surgery accept Aetna. Who can blame them, actually. And, the one I finally made the appointment with doesn't accept my secondary insurance. Luckily (haha) I've already met the out-of-pocket deductible for that plan so I'm okay.

I have an appointment in 11 days. That a waiting period, folks. I'm not complaining about that -- I'm hoping my wrist stops hurting by then and I can cancel the appointment. But, we DO have to wait in this country and most of us cannot go to any doctor we want to.

Tuesday, August 11, 2009

Being Billed For A "Free" Benefit

Have you ever been billed for what is supposed to be covered? I received a bill from the hospital where I get my annual mammogram for $8.61. Not too terrible, right? I can afford that, I thought. However, I realized that my insurance plan (Oxford at that time) offered this for free. I think it's a state law, actually but never mind. I called the Women's Imaging Center and verified that they took Oxford. I called Oxford to verify that the service is free. All this takes time which I am lucky to be able to carve out of my work day.

I've faced this sort of issue before and despite numerous calls to all parties concerned continue not only to be billed but then to have the bill sent to a collection agency. Because this affects my credit, I am not too happy with the providers' and insurers' errors/oversights/carelessness.

I wrote a letter and enclosed photocopies of 1. the bill 2. Oxford's summary of benefits 3. my Oxford card. The letter included a cc to the state attorney general health bureau but I won't actually send that copy unless I need to.

In the 80's I was able to get around $1,000 that Blue Cross / Blue Shield of NJ had cheated my family out of. If everyone is shorted $10 here, $50 there, can you imagine what the profits are?